rarediseases.org
Link authority for rarediseases.org (registrable domain: rarediseases.org) from the Common Crawl web graph: PageRank and harmonic centrality history since 2017, current scores, and the site's top backlink sources.
Web-graph authority (0-100)
Domain scores measure rarediseases.org as a whole: every subdomain's links rolled up into one node of Common Crawl's domain-level web graph. Host scores measure the exact hostname rarediseases.org. WWW scores cover the www variant of that hostname, which the graph tracks as its own entry since January 2026 (before that, www and bare host were merged). A big gap between domain and host usually means the domain's authority lives on other subdomains. PageRank is link-endorsement authority: how much weight the sites linking here carry themselves. Harmonic centrality measures reach: how close this site sits to the rest of the web when following links, which favors broadly connected sites over ones boosted by a few heavy linkers. All are normalized 0 to 100 within each crawl snapshot; a dash means that series does not exist for this site.
Homepage
What rarediseases.org presents on its own homepage: the page title, description, and the social share markup it publishes. Pulled from https://rarediseases.org.
| Title | National Organization for Rare Disorders | NORD |
|---|---|
| Description | NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases |
| OG Title | National Organization for Rare Disorders | NORD |
| OG Description | NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases |
| OG Site Name | National Organization for Rare Disorders |
| Twitter Title | National Organization for Rare Disorders | NORD |
| Twitter Card | summary_large_image |
Social accounts and contact points
Where this site maintains a presence and every reachable route its homepage exposes: social accounts, contact pages, addresses, and content feeds.
| NationalOrganizationforRareDisorders | |
| nord_rare | |
| national-organization-for-rare-disorders (business) | |
| X | rarediseases |
| Youtube | raredisorders |
| Contact pages |
https://rarediseases.org/contact/ https://rarediseases.org/contact-us/ |
|---|---|
| Phones |
1-800-999-6673 203-744-0100 |
| Blog |
https://rarediseases.org/news/ https://rarediseases.org/news/?taxonomy%5Bcategory%5D=patient-stories |
Structured data (JSON-LD)
The schema.org markup this homepage publishes: the machine-readable identity search engines and AI systems read. Types found: Organization, WebSite, ImageObject, WebPage, Person, Article.
JSON-LD block (3,049 bytes)
{"@context":"https://schema.org","@graph":[{"@type":"Organization","@id":"https://rarediseases.org/#organization","name":"National Organization for Rare Disorders","logo":{"@type":"ImageObject","@id":"https://rarediseases.org/#logo","url":"https://rarediseases.org/wp-content/uploads/2024/05/NORD_Logo-with-tag_Wide_Print_RGB-01-150x150.png","contentUrl":"https://rarediseases.org/wp-content/uploads/2024/05/NORD_Logo-with-tag_Wide_Print_RGB-01-150x150.png","caption":"National Organization for Rare Disorders","inLanguage":"en-US"}},{"@type":"WebSite","@id":"https://rarediseases.org/#website","url":"https://rarediseases.org","name":"National Organization for Rare Disorders","publisher":{"@id":"https://rarediseases.org/#organization"},"inLanguage":"en-US","potentialAction":{"@type":"SearchAction","target":"https://rarediseases.org/?s={search_term_string}","query-input":"required name=search_term_string"}},{"@type":"ImageObject","@id":"https://rarediseases.org/wp-content/uploads/2024/09/nord-logo-wide-white-1200.jpg","url":"https://rarediseases.org/wp-content/uploads/2024/09/nord-logo-wide-white-1200.jpg","width":"1200","height":"630","caption":"NORD logo on white background photo.","inLanguage":"en-US"},{"@type":"WebPage","@id":"https://rarediseases.org/#webpage","url":"https://rarediseases.org/","name":"National Organization for Rare Disorders | NORD","datePublished":"2022-03-08T15:02:17-05:00","dateModified":"2026-07-09T14:04:56-04:00","about":{"@id":"https://rarediseases.org/#organization"},"isPartOf":{"@id":"https://rarediseases.org/#website"},"primaryImageOfPage":{"@id":"https://rarediseases.org/wp-content/uploads/2024/09/nord-logo-wide-white-1200.jpg"},"inLanguage":"en-US"},{"@type":"Person","@id":"https://rarediseases.org/author/sroberts/","name":"sroberts","url":"https://rarediseases.org/author/sroberts/","image":{"@type":"ImageObject","@id":"https://secure.gravatar.com/avatar/48a41f06778f4e2d933faf220e833c08125f29e39143d1e352e14cc995703d3d?s=96&d=mm&r=g","url":"https://secure.gravatar.com/avatar/48a41f06778f4e2d933faf220e833c08125f29e39143d1e352e14cc995703d3d?s=96&d=mm&r=g","caption":"sroberts","inLanguage":"en-US"},"worksFor":{"@id":"https://rarediseases.org/#organization"}},{"@type":"Article","headline":"National Organization for Rare Disorders | NORD","keywords":"NORD,Rare Diseases","datePublished":"2022-03-08T15:02:17-05:00","dateModified":"2026-07-09T14:04:56-04:00","author":{"@id":"https://rarediseases.org/author/sroberts/","name":"sroberts"},"publisher":{"@id":"https://rarediseases.org/#organization"},"description":"NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases","name":"National Organization for Rare Disorders | NORD","@id":"https://rarediseases.org/#richSnippet","isPartOf":{"@id":"https://rarediseases.org/#webpage"},"image":{"@id":"https://rarediseases.org/wp-content/uploads/2024/09/nord-logo-wide-white-1200.jpg"},"inLanguage":"en-US","mainEntityOfPage":{"@id":"https://rarediseases.org/#webpage"}}]}Authority over time
Every Common Crawl web-graph release since 2017, roughly quarterly. The domain series goes back to 2017; Common Crawl only began publishing the host-level graph in 2020, so host lines start there. Click a legend entry to show or hide that line. Flat lines are normal for established sites; watch for sustained rises or drops, which track real gains or losses in who links here.
A note on www: through the end of 2025 the source web graph merged www and non-www hostnames into the bare name, so one host line covers both. Starting in January 2026 the graph splits them into separate entries, which is why www can carry its own scores going forward.
Backlink counts
Unique linking domains seen in Common Crawl's link graphs. This is a different dataset than the 0-100 authority scores above: these are raw counts, host-level for rarediseases.org and domain-level for rarediseases.org with all its subdomains combined. Common Crawl covers a large sample of the web, not all of it, so treat counts as comparable between sites rather than absolute totals.
Top backlinks in the domain graph
Common Crawl publishes two link graphs. The DOMAIN graph connects whole domains: every link from any page of one domain to any page of another. This table shows the highest-authority domains linking to rarediseases.org (including its subdomains), ranked by the linker's PageRank. The table shows the top 1,000; the download carries the full stored list (up to 10,000 linkers) as JSON. Click a linker for its own site profile.
Top backlinks in the host graph
The HOST graph connects exact hostnames, so subdomains count separately. This table shows the highest-authority hosts linking to rarediseases.org specifically, ranked by the linker's PageRank. The table shows the top 1,000; the download carries the full stored list (up to 10,000 linkers) as JSON. Click a linker for its own site profile.